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Technology is unkind to the elderly


In about 1990 we got our first computer. I say "we" because my husband and I shared a desktop which I used infrequently. I mostly used it for word processing, and the internet was very young. At the turn of the millenium, my children were using computers and they were limited to 1 hour of computer time a day, which was on a shared desktop. By 2001 I was communicating with my grandmother, then in her late 80's, by email.

My grandmother had received, probably just prior to the millenium, an email machine from her son. It was a little thing on which she could type messages to a dear friend who lived in London. She loved the ability to spontaneously send him a message and get an answer in a day or less. She was a retired reference librarian and had worked in the Bay Area school system where an exhaustive knowledge of the Dewey Decimal System allowed her to connect students to the resources they needed. We thought she would be delighted to have an Apple Macintosh. With such a thing she could query the world of data and feed her insatiably curious mind.

This gift was a failure. Nothing about it was intuitive. Scrolling, clicking, using a mouse, returning to a previous screen, all were lessons that she had trouble learning. She would call one of us or her son when the screen inexplicably looked different than it had and she couldn't find her way back to something familiar. I think she started to die a little when she couldn't make that pretty white computer work. In retrospect she just needed the email machine.

A few years ago my father, now in his 80's, gave me an iPad which he had bought and didn't use. By guess and by golly (as my grandfather would have said) we managed to navigate its passwords and get it transferred over to me. It was cute, but certainly no more useful than a laptop, and rather delicate, so I gradually broke its screen and then it was stolen when I was in South Sudan. On a recent trip, my father showed me his new iPad, which he also didn't use, which he thought I might have use for. He had been seduced into buying it at an Apple store and, likely with the help of some bright millennial, had entered a new password and the answers to some security questions. Being wise, he didn't write the password on the machine itself, since he knows how important password security is, so it is gone. Also, having had a long and very complex life, the answers to the security questions were subject to shifting interpretation. Although he and I contacted customer service, there is no remedy. The pretty iPad with the retina display is now an attractive coaster or possibly something under which to press flowers. (Those of you with a penchant for problem solving will ask about "return to factory settings" or even "jailbreaking." I will just tell you that, after trying these things for 2 hours with someone of legendary computer cleverness, Apple has those options pretty well blocked.)

Technology, by which I mean computers of all sizes including phones and tablets and the like, offers incredible potential to people as they age. Music can fill their ears, raise their spirits and help them to frame their lives as brave and glorious. They can see pictures of far off places which they might not be able to visit again, talk to children and grandchildren while seeing their faces, access reminder notes, pay bills, review bank accounts, donate to charity, play games that tweak their brains in good ways. Computers, at their best, make our worlds larger and extend the capacity of our minds. This is just what we need as we get older. But computers, with their infernal passwords and vulnerabilities to security breaches, their little bitty buttons and sometimes tiny screens, their failing wireless modems and misleading advertising, are making the old feel older.

By the age of 85, about 1/3 of people have Alzheimer's disease, per the Alzeimer's Association. This, of course, vastly underestimates the proportion of elderly people with some kind of impairment in their memory, problem solving or ability to learn new tasks. This group of people need, more than we younger folk, to have access to their medical records and to use the wealth of online resources to remain healthy or monitor diseases. It is precisely the group whose health can most benefit from computers and the internet who are left out. Almost all of the elderly patients I see in clinic decline to use the computerized patient portal. Although I think that the portal itself is pretty easy to use, it is the many steps involved in getting to the portal that are daunting, so much so that our older patients hesitate to even try.

In the UK in 2012, the Prime Minister issued a challenge to make the country more friendly to patients with dementia. This included a Dementia Friendly Technology Charter. The Challenge includes making workplaces and communities more kind to people as their brains age, but also to help them get some benefit from technology. There are quite a lot of technological solutions to the problems of dementia, especially for caregivers, but I don't think that producers of hardware such as computers and tablets are stepping up to the plate. It is perfectly possible to create an iPad that doesn't depend of remembering passwords and reduces vulnerabilities to abuse while allowing users to access music and video chatting and photos and information. The UK has made some headway toward dementia-friendliness. The United States has no such challenge in place and from my vantage point, people are just becoming more marginalized as they age.

I would like to encourage the hugely successful producers of technology to respect their elders to the extent that they create products that will welcome them. The makers of software that is useful enough to become a necessity should think twice before requiring that users have excellent memories. And until our technology becomes more friendly, companies should develop remedies so that people who develop dementia (or have brain injuries) are not effectively shut out.

Comments

David said…
My mother until her death at age 87 used her iPad every day. She had problems using a desktop computer so I suggested the iPad. She had others help her set up passwords and she wrote the passwords in a little notebook that she kept. A few years ago, I convinced my wife that she should learn to use a computer so she could keep track of our finances if something happened to me. I tried to teach to use a mouse on our desktop computer but she hated it. So I bought her an iPad. Messages to update or network problems give her trouble but she used the iPad every day - using an app to view our finances and also to shop online at Amazon and a few other retailers. I think that an iPad is an excellent gift for an older person - but they do need some help to get started and to keep their iPads software up to date.
Janice Boughton said…
It's wonderful she was able to have that experience and I'm sure you enriched her life by helping her get it set up. Regarding iPads though I would agree except for my recent experience. Apple can do better. The vast majority of people suffer cognitive loss as they age. Many of them balk at having help or don't have access to help so the tech world leaves them high and dry.
Icarus said…
Sadly American systems, and I suspect other countries too, are still using anachronistic designs like entering and confirming your password and/or email, but having them hidden, which works okay on the desktop, not so much on a tiny phone keyboard. Some websites have the little eye that you can click to show your typing but most don't because, reasons.
Allison said…
I wish the patient portals were better. It would be handy to see chart notes from the visit so if I've forgotten something, I can read the notes. But no, no notes from the visit. No surgical notes. Nothing really useful except for blood test results. I gave up on portals, too much of a pain to logon for not much usefulness.

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